Newsletter No 4 - Winter 2017
The European Patient Ambassador Programme (EPAP) – Newsletter No 4 2017
In Oslo, Norway, the temperature has dropped well below zero degrees and there is regular snowfall. Here many locals enjoy their weekends skiing the cross-country trails or skating on the frozen lakes. Whether you like skis or skates, the feeling of silent progress, the bright light of the sun reflected in the snow and the long view of the trails ahead is magnificent.
As my three years as EPAP representative to the European Lung Foundation (ELF) council came to an end in February, I felt a similar feeling about the future of EPAP because of the efforts of our many enthusiastic EPAP learners and the dedicated efforts of our EPAP Patient Advisory Group (PAG).
The EPAP PAG are a wonderfully committed and insightful group of patients and carers, who are doing a fabulous job advancing the content and profile of EPAP. During the past three years, the EPAP PAG have amongst others overseen partnerships to translate EPAP into Dutch, French, German and Italian and helped make EPAP accessible to new patient groups - respiratory as well as non-respiratory. This newsletter has been launched to inform about EPAP learners recent experiences and involve even more people in different health communities with the programme.
You, our EPAP learners, are the silent progress, the bright light and the long view ahead for the way we think about health care and I look forward to hear more of you share your experiences for our common good. I have been extremely happy to have experienced the eagerness and collaboration of fellow EPAP learners, the EPAP PAG, the ELF staff and the ELF council as the EPAP representative to ELF council these past three years. I am equally excited and assured about the bright future of EPAP with Marta Almagro as my very competent replacement to council and I encourage you all to make her feel very welcome in her new role.
Thank you for the joy and for your experiences!
Newsletter No 4 2017 articles:
- App for people with all forms of Pulmonary Fibrosis (Matt Cullen)
- Involving patients in research and development (Professor Thierry Troosters)
- Patient solidarity celebrations in Malta boosted by EPAP (Gertrude Buttigieg)
- Running EPAP taster sessions in the UK (Dave Manton and Kate Hill)