Newsletter No 5 - 2018
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Hello. My name is Jeanette Boyd and I manage a number of patient projects at the European Lung Foundation (ELF) including co-ordination of the European Patient Ambassador Programme (EPAP).
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I hope that you will stay in touch and look forward to keeping you involved in the wider EPAP community.
This newsletter is made up of articles showing how patients and patient organisations are working to influence policy – we hope you enjoy their insights:
- From isolation to influence: how an online parent community is influencing care and research (Carlee Gilbert)
- You can talk the talk but can you walk the walk (Simon R Stones)
- Raising awarness of Alpha-1 at European level (Gonny Gutierrez)
- EPAP patient advisory group bonds in Brussels