Newsletter No 5 - 2018

We are committed to keeping your data safe

Hello.  My name is Jeanette Boyd and I manage a number of patient projects at the European Lung Foundation (ELF) including co-ordination of the European Patient Ambassador Programme (EPAP). 

ELF has reviewed the way it handles data from individuals taking the EPAP modules and we have updated our EPAP Privacy Policy in line with the recent General Data Protection Regulation (GDPR). The policy details how we collect and process personal data.

Would you still like to hear from us?

You are currently on the mailing list for our EPAP quarterly newsletter and we would love to be able to keep in touch with you this way.  You can unsubscribe from the newsletter at any time by clicking on the link within it.  Our newsletter contains articles from European patient ambassadors on their experiences and news on updates and resources relevant to EPAP.

By being on our mailing list, your details will only be used to send you the newsletter. We will never pass them on to anyone else.

If you no longer wish to stay on our EPAP newsletter mailing list please email info@europeanlung.org and ask to be removed.  

I hope that you will stay in touch and look forward to keeping you involved in the wider EPAP community.

This newsletter is made up of articles showing how patients and patient organisations are working to influence policy – we hope you enjoy their insights: 

• From isolation to influence: how an online parent community is influencing care and research (Carlee Gilbert)
• You can talk the talk but can you walk the walk (Simon R Stones)
• Raising awarness of Alpha-1 at European level (Gonny Gutierrez)
• EPAP patient advisory group bonds in Brussels

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