The European Lung Foundation (ELF) organised a patient organisation networking day during the ERS International Congress, the biggest lung congress in the world, which took place in London in September with over 22,000 attending.
Patient organisations have attended this annual congress for many years and this year ELF wanted to give more time to training and networking opportunities for patient organisations. One of the workshops planned for the day was “How EPAP can support your patient organisation”.
After discussing the workshop with the EPAP patient advisory group back in May, two volunteers came forward, happy to help run the workshop - Betty Frankemölle from the Netherlands and Amanda Roberts from the UK.
Both are experienced and very active patient ambassadors, with a history of working for patient organisations in their countries as well as joining international projects.
We also felt that Betty’s and Amanda’s experiences should be passed on to more people and we have therefore decided to incorporate them into the EPAP module “Participating in healthcare conferences”. They will appear there shortly.
If you want to ask Amanda or Betty any questions about their experience, you either email Kerstin Morrison or you can contact them via the comments on the Facebook post relating to this article.